After talking to my dr about it and to my mother in law who (the poor lady) has it too it all sounds oh too creepily familiar almost right down to the last symptom. I am hoping that they come up with something else or say that it is all caused by the spondylosis but I'm not going to hold my breath.
I am waiting now for appts with a neurologist, a pain clinic and back to physio and all I am hoping for is for someone somewhere to find a EXPLAINABLE reason as to what all of this stuff going on is and FIX it. Even though I know (and don't want to admit) that probably won't happen.
My father in law Ron sent this to me today and it explains the Fibromyalgia very well.
MY NAME IS FIBROMYALGIA
by Terri Been
Hi....My Name is Fibromyalgia, and I'm an Invisible Chronic Illness. I am now velcroed to you for life. Others around you can't see me or hear me,but YOUR body feels me. I can attack you anywhere and anyhow I please.
I can cause severe pain or, if I'm in a good mood, I can just cause you to ache all over.
Remember when you and Energy ran around together and had fun?
I took Energy from you, and gave you Exhaustion. Try to have fun now! I also took Good Sleep from you and, in its place, gave you Brain Fog. I can make you tremble internally or make you feel cold or hot when everyone else feels normal. Oh, yeah, I can make you feel anxious or depressed, too. If you have something planned, or are looking forward to a great day, I can take that away, too. You didn't ask for me. I chose you for various reasons:
by Terri Been
Hi....My Name is Fibromyalgia, and I'm an Invisible Chronic Illness. I am now velcroed to you for life. Others around you can't see me or hear me,but YOUR body feels me. I can attack you anywhere and anyhow I please.
I can cause severe pain or, if I'm in a good mood, I can just cause you to ache all over.
Remember when you and Energy ran around together and had fun?
I took Energy from you, and gave you Exhaustion. Try to have fun now! I also took Good Sleep from you and, in its place, gave you Brain Fog. I can make you tremble internally or make you feel cold or hot when everyone else feels normal. Oh, yeah, I can make you feel anxious or depressed, too. If you have something planned, or are looking forward to a great day, I can take that away, too. You didn't ask for me. I chose you for various reasons:
That virus you had that you never recovered from, or that car accident,
or maybe it was the years of abuse and trauma. Well, anyway, I'm here to stay!I hear you're going to see a doctor who can get rid of me. I'm rolling on the floor, laughing. Just try. You will have to go to many, many doctors until you find one who can help you effectively. You will be put on pain pills,sleeping pills, energy pills, told you are suffering from anxiety or depression,given a TENs unit, get massaged, told if you just sleep and exercise properly I will go away, told to think positively, poked, prodded, and MOST OF ALL, not taken as seriously as you feel when you cry to the doctor how debilitating life is every day.
Your family, friends and coworkers will all listen to you until they just get tired of hearing about how I make you feel, and that I'm a debilitating disease. Some of they will say things like "Oh, you are just having a bad day" or"Well, remember, you can't do the things you use to do 20 YEARS ago", not hearing that you said 20 DAYS ago. Some will just start talking behind your back, while you slowly feel that you are losing your dignity trying to make them understand, especially when you are in the middle of a conversation with a
"Normal" person, and can't remember what you were going to say next!In closing, (I was hoping that I kept this part a secret), but I guess you already
found out...the ONLY place you will get any support and understanding in dealing
with me is with Other People With Fibromyalgia.
or maybe it was the years of abuse and trauma. Well, anyway, I'm here to stay!I hear you're going to see a doctor who can get rid of me. I'm rolling on the floor, laughing. Just try. You will have to go to many, many doctors until you find one who can help you effectively. You will be put on pain pills,sleeping pills, energy pills, told you are suffering from anxiety or depression,given a TENs unit, get massaged, told if you just sleep and exercise properly I will go away, told to think positively, poked, prodded, and MOST OF ALL, not taken as seriously as you feel when you cry to the doctor how debilitating life is every day.
Your family, friends and coworkers will all listen to you until they just get tired of hearing about how I make you feel, and that I'm a debilitating disease. Some of they will say things like "Oh, you are just having a bad day" or"Well, remember, you can't do the things you use to do 20 YEARS ago", not hearing that you said 20 DAYS ago. Some will just start talking behind your back, while you slowly feel that you are losing your dignity trying to make them understand, especially when you are in the middle of a conversation with a
"Normal" person, and can't remember what you were going to say next!In closing, (I was hoping that I kept this part a secret), but I guess you already
found out...the ONLY place you will get any support and understanding in dealing
with me is with Other People With Fibromyalgia.
1 comment:
OH, Melanie, my heart goes out to you. Truly, I hope that you do NOT have fibro mialga. If I could just hug you and absorb it out, I would do that for you, in a twinkle. TRY to stay positive and count your blessings anyway. BIG HUG, from the wicked step momma
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